Wednesday, January 25, 2012

January 25, 2012

We took the boys to their pediatrician yesterday and she said she saw "cause for concern" but wants a more qualified specialist to make the diagnosis. She is trying to arrange an appointment at a clinic in Beckley. Possibly at Marshall or WVU. She said they could just be hyper kids with some OCD issues but when you add in the speech delay, it makes her more inclined to think it is autism. High functioning autism. They do engage with us and each other. The smile and laugh when tickled.

We had their hearing checked in November and their little ears are still in working order. I'm trying to think of all the things I couldn't think of yesterday. I forgot to get a copy of their shot records. I need those for their pre-school evaluation. I just called the pediatrician office and I can pick up their shot records or they can fax them somewhere for me. Yay! My memory is non-existent at this point. I have to write down everything or I forget.

Jake has a small cavity on one of his front teeth. We need to make an appointment with a kids' dentist too. They drink too much juice but it is the only way I can get them to poop. And their toothpaste doesn't have fluoride in it yet because they don't know how to spit out the toothpaste. I used Trey's toothpaste on them last night. I only used a small amount but I know they swallowed it and today Patrick threw up.

Jake took a long time to fall asleep last night. (This morning!) Patrick passed out around 3am while Jake was awake until about 4:15 or so. Patrick woke up crying around 5:45am but settled down and went back to sleep around 6:15. They slept really well after that and I woke them up at 1:30pm. They ate bananas and cheerios and drank milk. Had a shower and got dressed. Brushed teeth with the baby toothpaste. No tantrums so far today. Patrick didn't even cry when he threw up. He just looked at me like "What just happened?", then he looked disgusted. It was pretty gross. Good thing he was sitting on his bed when it happened and not the carpet. Much easier to wash a sheet and bleach a plastic mattress than to scrub a carpet.

They have new books to read and a new coloring book so we are doing that now.

I found this link for the clinic in Beckley: http://www.autismrecoveryresourcecenter.com/

I guess this is the link to the Marshall place: http://www.marshall.edu/atc/

and WVU: http://clinics.cedwvu.org/next-steps/

The boys are still scheduled for pre-school evaluation on Feb 7th and an autism specialist will be there so I am wondering if we really need to go to any of these other places. Do we really need a team of caregivers? I am a stay at home mom so I don't have to worry about getting time off from work to go to these places but transportation is an issue.

I don't feel like writing much today. Sleep deprivation and stress.

Jake was pointing at pictures in a book today! He usually takes our fingers and points to things.

Patrick has been identifying letters and numbers and some colors. He can't pronounce all the words and for some reason 3 is always P and 4 is always B, but we clap and cheer. They both love it when we cheer.

It is all so overwhelming. I keep saying that but it is how I feel.

This post is a jumbled mess. I kept going back and adding stuff.

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